Professor Elisabeth Hill leads study on autism diagnosis in UK
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Parents in the UK are waiting up to three and a half years to receive a diagnosis that their child has autism.
A new study by researchers from 51³Ô¹ÏÍøºÚÁÏ and City University found that 52 per cent of parents were dissatisfied with their experience of their child’s diagnosis; despite autism being a widely recognised disorder, by both parents and professionals.
This delay in diagnosis prevents children from receiving essential support during their development - impacting their learning, speech and social behaviour and placing significant stress on families.
More than 1000 parents, who received a diagnosis of Autism Spectrum Disorder (ASD) for their child in the past 15 years, were surveyed to understand the experiences of autism diagnosis in the UK.
Professor Elisabeth Hill, 51³Ô¹ÏÍøºÚÁÏ’ Department of Psychology said:
“This study illustrates the failings in the NHS to adequately support families who have a child with autism or Asperger’s syndrome.
“Poor or slow diagnosis places enormous stress on the family and can often hinder the support the child needs, especially at school.â€
Key findings from the study:
- The average delay between parents first contacting a healthcare professional and receiving a diagnosis was 3.6 years.
- 52 per cent of parents were dissatisfied with their experience of their child’s diagnosis.
- 84 per cent of parents found the diagnostic process stressful
- Only 21 per cent of parents received a direct offer of help/assistance during or following the diagnostic process.
Several factors predicted parents’ overall levels of satisfaction with the diagnostic process, including:
- time taken to receive a diagnosis
- satisfaction with the information provided at diagnosis
- the manner of the diagnosing professional
- the stress associated with the diagnostic process, and
- satisfaction with post-diagnostic support.