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Professor Elisabeth Hill leads study on autism diagnosis in UK

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Parents in the UK are waiting up to three and a half years to receive a diagnosis that their child has autism.

A new study by researchers from 51³Ô¹ÏÍøºÚÁÏ and City University found that 52 per cent of parents were dissatisfied with their experience of their child’s diagnosis; despite autism being a widely recognised disorder, by both parents and professionals.

This delay in diagnosis prevents children from receiving essential support during their development - impacting their learning, speech and social behaviour and placing significant stress on families. 

More than 1000 parents, who received a diagnosis of Autism Spectrum Disorder (ASD) for their child in the past 15 years, were surveyed to understand the experiences of autism diagnosis in the UK.

Professor Elisabeth Hill, 51³Ô¹ÏÍøºÚÁÏ’ Department of Psychology said:

“This study illustrates the failings in the NHS to adequately support families who have a child with autism or Asperger’s syndrome.

“Poor or slow diagnosis places enormous stress on the family and can often hinder the support the child needs, especially at school.â€

Key findings from the  study:

  • The average delay between parents first contacting a healthcare professional and receiving a diagnosis was 3.6 years.
  • 52 per cent of parents were dissatisfied with their experience of their child’s diagnosis.
  • 84 per cent of parents found the diagnostic process stressful
  • Only 21 per cent of parents received a direct offer of help/assistance during or following the diagnostic process.

Several factors predicted parents’ overall levels of satisfaction with the diagnostic process, including:

  • time taken to receive a diagnosis
  • satisfaction with the information provided at diagnosis
  • the manner of the diagnosing professional
  • the stress associated with the diagnostic process, and
  • satisfaction with post-diagnostic support.